Insights

Partnership Synergy Leverage existing alliances with leading institutions and researchers to propose collaborative programs, grant support, and joint awareness campaigns that can attract sponsorship and matching funds.

Fundraising Growth With a revenue range of 1M–10M and active networks in rare disease communities, explore donor campaigns, corporate sponsorship packages, and philanthropic partnerships aligned with blindness and deafness research.

Data Collaboration The data collection platform offers a path to data-driven partnerships; propose analytics services, registry integrations, and research study support to academic and biotech partners seeking patient-reported outcomes.

Tech Enablement Utilize their tech stack and digital channels to offer cloud, security, CRM, and engagement solutions that can streamline operations for non-profits managing large partner networks and fundraising events.

Community Engagement Private Discord community and awareness initiatives present opportunities for targeted outreach programs, education platforms, and event sponsorships that resonate with patient organizations and caregivers.

Similar companies to Usher Syndrome Coalition

Usher Syndrome Coalition Tech Stack

Usher Syndrome Coalition uses 8 technology products and services including iCIMS, Amazon Web Services, Google Workspace, and more. Explore Usher Syndrome Coalition's tech stack below.

Media & News

Usher Syndrome Coalition's Email Address Formats

Usher Syndrome Coalition uses at least 1 email format:
Usher Syndrome Coalition Email FormatsExamplePercentage
F.Last@usher-syndrome.orgJ.Doe@usher-syndrome.org
100%

Frequently Asked Questions

What is Usher Syndrome Coalition's phone number?

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You can contact Usher Syndrome Coalition's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Usher Syndrome Coalition's official website and social media links?

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Usher Syndrome Coalition's official website is usher-syndrome.org and has social profiles on LinkedIn.

How much revenue does Usher Syndrome Coalition generate?

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As of August 2026, Usher Syndrome Coalition's annual revenue is estimated to be $1M - $10M.

What is Usher Syndrome Coalition's SIC code and NAICS code?

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Usher Syndrome Coalition's SIC code is 7299 - Miscellaneous Personal Services, Not Elsewhere Classified and NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Usher Syndrome Coalition have currently?

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As of August 2026, Usher Syndrome Coalition has approximately 12 employees across 3 continents, including North America, Europe and Asia. Key team members include Usher Syndrome Ambassador For India: G. R., Program Coordinator: J. R. and Administrator Af Usher Syndrome Dk: A. H. G. Explore Usher Syndrome Coalition's employee directory with LeadIQ.

What industry does Usher Syndrome Coalition belong to?

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Usher Syndrome Coalition operates in the Non-profit Organizations industry.

What technology does Usher Syndrome Coalition use?

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Usher Syndrome Coalition's tech stack includes iCIMS, Amazon Web Services, Google Workspace, SendGrid, Firespring, Priority Hints, Datadog and Piwik PRO Core.

What is Usher Syndrome Coalition's email format?

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Usher Syndrome Coalition's email format typically follows the pattern of F.Last@usher-syndrome.org. Find more Usher Syndrome Coalition email formats with LeadIQ.

When was Usher Syndrome Coalition founded?

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Usher Syndrome Coalition was founded in 2008.
Usher Syndrome Coalition logo

Usher Syndrome Coalition

Non-profit OrganizationsMassachusetts, United States11-50 Employees

The Usher Syndrome Coalition is a nonprofit organization focused on Usher syndrome, the leading genetic cause of combined deafness and blindness. Its mission centers on raising awareness, accelerating research, and providing information and support to affected individuals and families. The coalition aggregates expertise from member institutions and researchers and collaborates with partners worldwide to serve as a comprehensive resource for the Usher syndrome community.

It is based in Westford, Massachusetts, and operates with a relatively small team. In March 2023, it launched a private Discord community server to facilitate direct engagement among community members.

Section iconCompany Overview

Phone number
SIC Code
7299 - Miscellaneous Personal Services, Not Elsewhere Classified
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2008
Employees
11-50

Section iconFunding & Financials

  • $1M - $10M

    Usher Syndrome Coalition's revenue is estimated to be in the range of $1M - $10M

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