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Insights

Strong Community Engagement The Usher Syndrome Coalition has demonstrated active community engagement by launching a private Discord server and developing a dedicated data collection platform, indicating a proactive approach to member support and engagement that can be further expanded with tailored digital solutions or technology partnerships.

Research Collaboration Focus With partnerships involving prominent institutions and biotech companies like ProQR Therapeutics, the organization presents opportunities for technology providers and research-focused firms to collaborate on clinical trials, data management, or patient recruitment systems.

Digital Infrastructure Utilizing cloud-based tools such as Google Workspace and Datadog suggests a tech-savvy organization open to adopting innovative solutions, making it a potential client for cloud services, cybersecurity, and enterprise software vendors.

Funding Potential While detailed funding data is unavailable, the revenue range indicates available budgets for technology and service investments from non-profit grants, sponsorships, or corporate partnerships aimed at advancing their research and awareness initiatives.

Aligned with Health Tech Trends The coalition’s focus on genetic research and patient data collection aligns with emerging health tech trends, offering opportunities for sales of health data management systems, telemedicine tools, or wearable health monitoring solutions tailored to rare disease communities.

Usher Syndrome Coalition Tech Stack

Usher Syndrome Coalition uses 8 technology products and services including Cloudflare, Google Workspace, Font Awesome, and more. Explore Usher Syndrome Coalition's tech stack below.

  • Cloudflare
    Content Management System
  • Google Workspace
    Email
  • Font Awesome
    Font Scripts
  • Firespring
    IT Infrastructure
  • jQuery
    Javascript Libraries
  • FingerprintJS
    Javascript Libraries
  • Datadog
    Real User Monitoring
  • Cloudflare Bot Management
    Security

Usher Syndrome Coalition's Email Address Formats

Usher Syndrome Coalition uses at least 1 format(s):
Usher Syndrome Coalition Email FormatsExamplePercentage
F.Last@usher-syndrome.orgJ.Doe@usher-syndrome.org
50%
F.Last@usher-syndrome.orgJ.Doe@usher-syndrome.org
50%

Frequently Asked Questions

Where is Usher Syndrome Coalition's headquarters located?

Minus sign iconPlus sign iconUsher Syndrome Coalition's main headquarters is located at 9 Cornerstone Square Suite 400-224 Westford, Massachusetts 01886 United States. The company has employees across 3 continents, including North AmericaAsiaEurope.

What is Usher Syndrome Coalition's phone number?

Minus sign iconPlus sign icon You can contact Usher Syndrome Coalition's main corporate office by phone at
+1-978-637-****
. For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Usher Syndrome Coalition's official website and social media links?

Minus sign iconPlus sign iconUsher Syndrome Coalition's official website is usher-syndrome.org and has social profiles on LinkedIn.

What is Usher Syndrome Coalition's SIC code NAICS code?

Minus sign iconPlus sign iconUsher Syndrome Coalition's SIC code is 8322 - Individual and Family Social Services NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Usher Syndrome Coalition have currently?

Minus sign iconPlus sign iconAs of April 2026, Usher Syndrome Coalition has approximately 13 employees across 3 continents, including North AmericaAsiaEurope. Key team members include Executive Director: K. V.Director Of Outreach: N. O.Executive Director: K. S.. Explore Usher Syndrome Coalition's employee directory with LeadIQ.

What industry does Usher Syndrome Coalition belong to?

Minus sign iconPlus sign iconUsher Syndrome Coalition operates in the Non-profit Organizations industry.

What technology does Usher Syndrome Coalition use?

Minus sign iconPlus sign iconUsher Syndrome Coalition's tech stack includes CloudflareGoogle WorkspaceFont AwesomeFirespringjQueryFingerprintJSDatadogCloudflare Bot Management.

What is Usher Syndrome Coalition's email format?

Minus sign iconPlus sign iconUsher Syndrome Coalition's email format typically follows the pattern of F.Last@usher-syndrome.org. Find more Usher Syndrome Coalition email formats with LeadIQ.

When was Usher Syndrome Coalition founded?

Minus sign iconPlus sign iconUsher Syndrome Coalition was founded in 2008.

Usher Syndrome Coalition

Non-profit OrganizationsMassachusetts, United States11-50 Employees

The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness, while providing information and support to individuals and families affected by Usher syndrome.

The Coalition counts a number of leading institutions and researchers among its members. Member institutions bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Usher Syndrome Coalition strives to be the most comprehensive resource for the Usher syndrome community.

Section iconCompany Overview

Headquarters
9 Cornerstone Square Suite 400-224 Westford, Massachusetts 01886 United States
Phone number
+1-978-637-****
Website
usher-syndrome.org
SIC Code
8322 - Individual and Family Social Services
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2008
Employees
11-50

Section iconMedia & News

Section iconFunding & Financials

  • $1M$10M

    Usher Syndrome Coalition's revenue is estimated to be in the range of $1M$10M

Section iconFunding & Financials

  • $1M$10M

    Usher Syndrome Coalition's revenue is estimated to be in the range of $1M$10M

Company Leadership

  • Stylized image of a person
    K. V.
    Executive Director
    Phone icon
    Mobile Phone
  • Stylized image of a person
    N. O.
    Director Of Outreach
    Phone icon
    Mobile Phone
  • Stylized image of a person
    K. S.
    Executive Director
    Phone icon
    Mobile Phone
  • Stylized image of a person
    C. W.
    Marketing Communications Manager
    Phone icon
    Mobile Phone
  • Stylized image of a person
    S. J.
    Board Member, Finance Committee Member
    Phone icon
    Mobile Phone

Employee Directory

  • Stylized image of a person
    S. M.
    Treasurer Board Of Directors
    Phone icon
    Mobile Phone
  • Stylized image of a person
    G. R.
    Usher Syndrome Ambassador For India
    Phone icon
    Mobile Phone
  • Stylized image of a person
    J. R.
    Program Coordinator
    Phone icon
    Mobile Phone

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