Insights

Strategic Partnerships Identify collaboration opportunities with leading research institutions and nonprofit networks connected to the Usher Syndrome Coalition to co-create awareness campaigns, data sharing initiatives, and participant recruitment programs for clinical studies.

Data Platform Leverage their data collection platform and private Discord community as channels for engagement tools, surveys, and participant outreach services to broaden reach for trials, registries, and donor programs.

Volunteer & Donor Engagement Offer targeted donor and volunteer management solutions to support their growing team and international partnerships, enabling smoother fundraising campaigns and expanded volunteer networks.

Technology & Analytics Propose managed hosting, security hardening, analytics, and integration services for their tech stack (S3, Cloudflare, Datadog, PHP) to improve reliability, data insights, and campaign performance.

Fundraising Alignment Highlight sponsorship and grant opportunities with funders aligned to rare disease and blindness research sectors, drawing on their revenue scale and partner history to craft compelling proposals.

Usher Syndrome Coalition Tech Stack

Usher Syndrome Coalition uses 8 technology products and services including Amazon S3, Cloudflare, Uploadcare, and more. Explore Usher Syndrome Coalition's tech stack below.

  • Amazon S3
    Content Delivery Network
  • Cloudflare
    Content Management System
  • Uploadcare
    File Sharing
  • Font Awesome
    Font Scripts
  • Firespring
    IT Infrastructure
  • jQuery
    Javascript Libraries
  • PHP
    Programming Languages
  • Datadog
    Real User Monitoring

Usher Syndrome Coalition's Email Address Formats

Usher Syndrome Coalition uses at least 1 format(s):
Usher Syndrome Coalition Email FormatsExamplePercentage
F.Last@usher-syndrome.orgJ.Doe@usher-syndrome.org
100%

Frequently Asked Questions

What is Usher Syndrome Coalition's phone number?

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You can contact Usher Syndrome Coalition's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Usher Syndrome Coalition's official website and social media links?

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Usher Syndrome Coalition's official website is usher-syndrome.org and has social profiles on LinkedIn.

How much revenue does Usher Syndrome Coalition generate?

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As of July 2026, Usher Syndrome Coalition's annual revenue is estimated to be $1M - $10M.

What is Usher Syndrome Coalition's NAICS code?

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Usher Syndrome Coalition's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Usher Syndrome Coalition have currently?

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As of July 2026, Usher Syndrome Coalition has approximately 13 employees across 3 continents, including North AmericaEuropeAsia. Key team members include Usher Syndrome Ambassador For India: G. R.Program Coordinator: J. R.Administrator Af Usher Syndrome Dk: A. H. G.. Explore Usher Syndrome Coalition's employee directory with LeadIQ.

What industry does Usher Syndrome Coalition belong to?

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Usher Syndrome Coalition operates in the Non-profit Organizations industry.

What technology does Usher Syndrome Coalition use?

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Usher Syndrome Coalition's tech stack includes Amazon S3CloudflareUploadcareFont AwesomeFirespringjQueryPHPDatadog.

What is Usher Syndrome Coalition's email format?

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Usher Syndrome Coalition's email format typically follows the pattern of F.Last@usher-syndrome.org. Find more Usher Syndrome Coalition email formats with LeadIQ.

When was Usher Syndrome Coalition founded?

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Usher Syndrome Coalition was founded in 2008.
Usher Syndrome Coalition logo

Usher Syndrome Coalition

Non-profit OrganizationsMassachusetts, United States11-50 Employees

The Usher Syndrome Coalition is a nonprofit organization focused on Usher syndrome, the leading genetic cause of combined deafness and blindness. Its mission centers on raising awareness, accelerating research, and providing information and support to affected individuals and families. The coalition aggregates expertise from member institutions and researchers and collaborates with partners worldwide to serve as a comprehensive resource for the Usher syndrome community.

It is based in Westford, Massachusetts, and operates with a relatively small team. In March 2023, it launched a private Discord community server to facilitate direct engagement among community members.

Section iconCompany Overview

Phone number
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2008
Employees
11-50

Section iconFunding & Financials

  • $1M - $10M

    Usher Syndrome Coalition's revenue is estimated to be in the range of $1M - $10M

Section iconFunding & Financials

  • $1M - $10M

    Usher Syndrome Coalition's revenue is estimated to be in the range of $1M - $10M

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