Usher Syndrome Coalition Email Format
Non-profit OrganizationsMassachusetts, United States11-50 Employees
The Usher Syndrome Coalition is a nonprofit organization focused on Usher syndrome, the leading genetic cause of combined deafness and blindness. Its mission centers on raising awareness, accelerating research, and providing information and support to affected individuals and families. The coalition aggregates expertise from member institutions and researchers and collaborates with partners worldwide to serve as a comprehensive resource for the Usher syndrome community. It is based in Westford, Massachusetts, and operates with a relatively small team. In March 2023, it launched a private Discord community server to facilitate direct engagement among community members.