Usher Syndrome Coalition logo

Usher Syndrome Coalition Employee Directory

Non-profit OrganizationsMassachusetts, United States11-50 Employees

The Usher Syndrome Coalition is a nonprofit organization focused on Usher syndrome, the leading genetic cause of combined deafness and blindness. Its mission centers on raising awareness, accelerating research, and providing information and support to affected individuals and families. The coalition aggregates expertise from member institutions and researchers and collaborates with partners worldwide to serve as a comprehensive resource for the Usher syndrome community.

It is based in Westford, Massachusetts, and operates with a relatively small team. In March 2023, it launched a private Discord community server to facilitate direct engagement among community members.

Find Usher Syndrome Coalition employees' phone numbers or email addresses

Usher Syndrome Coalition Global Highlights

Location
Employees

North America
14

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  • United States Of America
    14

Europe
2

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  • United Kingdom Of Great Britain And Northern Ireland
    1
  • Denmark
    1

Asia
1

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  • India
    1

Usher Syndrome Coalition's Leadership

  • Usher Syndrome Ambassador For India at Usher Syndrome Coalition
    G. R.
    Usher Syndrome Ambassador For India
  • Program Coordinator at Usher Syndrome Coalition
    J. R.
    Program Coordinator
  • Administrator Af Usher Syndrome Dk at Usher Syndrome Coalition
    A. H. G.
    Administrator Af Usher Syndrome Dk

Usher Syndrome Coalition Employee Metrics

100%
50%
0%
2026
2025
  • Community & Social Services
  • Branding
  • Entrepreneurship
  • Other
  • Business

Contact profiles from Usher Syndrome Coalition

Name
Title
Contact
Location
Last Update
  • Usher Syndrome Ambassador For India at Usher Syndrome Coalition
    G. R.
    Usher Syndrome Ambassador For India
    India, Maharashtra
    Mar 13, 2026
  • Program Coordinator at Usher Syndrome Coalition
    J. R.
    Program Coordinator
    Oct 16, 2024
  • Administrator Af Usher Syndrome Dk at Usher Syndrome Coalition
    A. H. G.
    Administrator Af Usher Syndrome Dk
    Denmark
    Sep 02, 2026

Frequently Asked Questions

What is Usher Syndrome Coalition known for?

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Usher Syndrome Coalition was founded in 2008 and operates in the Non-profit Organizations industry. You can contact Usher Syndrome Coalition's main corporate office by phone at . Explore Usher Syndrome Coalition's company overview page for more information.

What is Usher Syndrome Coalition's most common email format?

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Usher Syndrome Coalition employees' email format typically follows the pattern of F.Last@usher-syndrome.org. Trying to find reliable and up-to-date employee contact data? Find more Usher Syndrome Coalition email formats with LeadIQ.

How many employees does Usher Syndrome Coalition have currently?

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Usher Syndrome Coalition has approximately 12 employees as of August 2026. These team members are located across 3 continents, including North America, Europe and Asia.

Who are Usher Syndrome Coalition's key employees and leadership?

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As of August 2026, Usher Syndrome Coalition's key employees include:

  • Usher Syndrome Ambassador For India: G. R.
  • Program Coordinator: J. R.
  • Administrator Af Usher Syndrome Dk: A. H. G.

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