Insights

Strategic Partners Partner with Orphan Disease Center at University of Pennsylvania and expand collaboration opportunities with global networks to accelerate rare disease research funding and project pipelines.

Fundraising Potential With annual revenue under 1M and active 501(c)(3) status in the US and Netherlands, there is room to grow grant solicitation, corporate sponsorships, and donor-advised funds targeting ZARD research initiatives.

Tech stack Fit Current use of cloud and donor engagement tools (AWS, Google Cloud, Sendinblue, Wix/WordPress) presents upsell opportunities for advanced fundraising automation, CRM enhancement, and targeted outreach optimization.

Global Reach Operates globally with a small team; potential value in scalable volunteer programs, international fundraising campaigns, and region-specific awareness to drive international donations and partnerships.

Thought Leadership Focus on ZARD research positions the foundation to leverage content marketing, patient advocacy campaigns, and scientific communication services to attract researchers, foundations, and pharma interest.

Similar companies to ZC4H2 Research Foundation

ZC4H2 Research Foundation Tech Stack

ZC4H2 Research Foundation uses 8 technology products and services including iCIMS, Amazon Web Services, Wix, and more. Explore ZC4H2 Research Foundation's tech stack below.

ZC4H2 Research Foundation's Email Address Formats

ZC4H2 Research Foundation uses at least 1 email format:
ZC4H2 Research Foundation Email FormatsExamplePercentage
First@zc4h2foundation.orgJohn@zc4h2foundation.org
100%

Frequently Asked Questions

What is ZC4H2 Research Foundation's official website and social media links?

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ZC4H2 Research Foundation's official website is zc4h2foundation.org and has social profiles on LinkedIn.

How much revenue does ZC4H2 Research Foundation generate?

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As of August 2026, ZC4H2 Research Foundation's annual revenue is estimated to be <$1M.

What is ZC4H2 Research Foundation's NAICS code?

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ZC4H2 Research Foundation's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does ZC4H2 Research Foundation have currently?

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As of August 2026, ZC4H2 Research Foundation has approximately 3 employees across 2 continents, including North America and Asia. Key team members include Founder: C. P. Explore ZC4H2 Research Foundation's employee directory with LeadIQ.

What industry does ZC4H2 Research Foundation belong to?

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ZC4H2 Research Foundation operates in the Non-profit Organizations industry.

What technology does ZC4H2 Research Foundation use?

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ZC4H2 Research Foundation's tech stack includes iCIMS, Amazon Web Services, Wix, WordPress, Google Workspace, Google Cloud, Sendinblue and Piwik PRO Core.

What is ZC4H2 Research Foundation's email format?

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ZC4H2 Research Foundation's email format typically follows the pattern of First@zc4h2foundation.org. Find more ZC4H2 Research Foundation email formats with LeadIQ.

When was ZC4H2 Research Foundation founded?

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ZC4H2 Research Foundation was founded in 2018.
ZC4H2 Research Foundation logo

ZC4H2 Research Foundation

Non-profit OrganizationsNew York, United States2-10 Employees

The ZC4H2 Research Foundation is a nonprofit organization based in New York, New York, focused on improving the quality of life for individuals affected by ZC4H2 Associated Rare Disorders (ZARD) through support for medical and scientific research. ZARD is an ultra-rare neuromuscular condition caused by changes in the ZC4H2 gene, and the foundation aims to advance understanding and treatment to mitigate the impact on patients. The organization collaborates with the Orphan Disease Center at the University of Pennsylvania and holds 501(c)(3) status in the USA and the Netherlands, reflecting its global scope. With a small team, the foundation operates within the nonprofit sector and engages in partnerships to further its mission of supporting research into ZARD and related health outcomes.

Section iconCompany Overview

NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2018
Employees
2-10

Section iconFunding & Financials

  • <$1M

    ZC4H2 Research Foundation's revenue is estimated to be in the range of <$1M

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