The Children's Rare Disorders Fund
Non-profit OrganizationsNew York, United States2-10 Employees
The Children’s Rare Disorders Fund is a nonprofit organization based in New York, United States, focused on rare genetic disorders. Founded by parents of a child affected by FOXG1, the fund works to cure and treat as many rare conditions as possible by directing 100% of donations to the cause, made possible through volunteer staff and underwriters who cover all costs. Its mission centers on underserved communities within the rare disorder space, aiming to raise attention and support for a field that affects millions of children and adults worldwide. The organization operates within the nonprofit sector and seeks to address gaps in treatment and research for the thousands of rare disorders that currently lack effective therapies.