Insights

Niche Focus Beyond Batten Disease Foundation specializes in funding research for juvenile Batten disease, an ultra-rare neurodegenerative disorder, indicating an opportunity to offer specialized technologies, research tools, or pharmaceuticals tailored to rare disease research and treatment development.

Strategic Partnerships Recent collaborations like the partnership with Care Beyond Diagnosis highlight the foundation's openness to alliances that facilitate the development of management guidelines and increased research impact, suggesting potential for partnership, sponsorship, or technology integration opportunities.

Growth Potential With a revenue range of up to 10 million dollars and a small team, the organization could benefit from scalable solutions such as grant management platforms, research data analytics, or fundraising support to enhance operational efficiency and funding capabilities.

Technology Engagement The foundation's use of diverse digital tools and online outreach channels indicates active digital engagement, presenting opportunities for digital marketing services, website optimization, or innovative communication solutions to increase awareness and supporter engagement.

Funding & Research As the world leader in juvenile Batten disease research funding, the foundation may require advanced research management systems, data sharing platforms, or medical research funding solutions to streamline their grant processes and expand their research initiatives.

Beyond Batten Disease Foundation Tech Stack

Beyond Batten Disease Foundation uses 8 technology products and services including RSS, Microsoft 365, Priority Hints, and more. Explore Beyond Batten Disease Foundation's tech stack below.

  • RSS
    Content Management System
  • Microsoft 365
    Email
  • Priority Hints
    Performance
  • Yoast SEO
    Search Engines
  • UltimatelySocial
    Social Sharing
  • Vimeo
    Video Players
  • prettyPhoto
    Web Tools And Plugins
  • Twitter
    Widgets

Beyond Batten Disease Foundation's Email Address Formats

Beyond Batten Disease Foundation uses at least 1 format(s):
Beyond Batten Disease Foundation Email FormatsExamplePercentage
FLast@beyondbatten.orgJDoe@beyondbatten.org
63%
First@beyondbatten.orgJohn@beyondbatten.org
12%
Last@beyondbatten.orgDoe@beyondbatten.org
13%
FMLast@beyondbatten.orgJMDoe@beyondbatten.org
12%

Frequently Asked Questions

Where is Beyond Batten Disease Foundation's headquarters located?

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Beyond Batten Disease Foundation's main headquarters is located at P/o Box 50221 Austin, Texas 78763 United States. The company has employees across 1 continents, including North America.

What is Beyond Batten Disease Foundation's phone number?

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You can contact Beyond Batten Disease Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Beyond Batten Disease Foundation's official website and social media links?

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Beyond Batten Disease Foundation's official website is beyondbatten.org and has social profiles on LinkedIn.

What is Beyond Batten Disease Foundation's SIC code NAICS code?

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Beyond Batten Disease Foundation's SIC code is 8641 - Civic, Social, and Fraternal Associations NAICS code is 5417 - Scientific Research and Development Services.

How many employees does Beyond Batten Disease Foundation have currently?

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As of March 2026, Beyond Batten Disease Foundation has approximately 5 employees across 1 continents, including North America. Key team members include President And Ceo: M. B. K.President: C. E.Director: S. B.. Explore Beyond Batten Disease Foundation's employee directory with LeadIQ.

What industry does Beyond Batten Disease Foundation belong to?

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Beyond Batten Disease Foundation operates in the Research Services industry.

What technology does Beyond Batten Disease Foundation use?

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Beyond Batten Disease Foundation's tech stack includes RSSMicrosoft 365Priority HintsYoast SEOUltimatelySocialVimeoprettyPhotoTwitter.

What is Beyond Batten Disease Foundation's email format?

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Beyond Batten Disease Foundation's email format typically follows the pattern of FLast@beyondbatten.org. Find more Beyond Batten Disease Foundation email formats with LeadIQ.

When was Beyond Batten Disease Foundation founded?

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Beyond Batten Disease Foundation was founded in 2008.

Beyond Batten Disease Foundation

Research ServicesTexas, United States2-10 Employees

In 2008, Beyond Batten Disease Foundation was formed by Charlotte and Craig Benson in response to their daughter's diagnosis of Batten disease and supported by a community who shared the belief that something had to be done. BBDF was established to eradicate juvenile Batten disease by raising awareness and funds to accelerate research for a treatment or cure. Today BBDF is the world leader in juvenile Batten disease research funding.

Section iconCompany Overview

Headquarters
P/o Box 50221 Austin, Texas 78763 United States
Phone number
SIC Code
8641 - Civic, Social, and Fraternal Associations
NAICS Code
5417 - Scientific Research and Development Services
Founded
2008
Employees
2-10

Section iconFunding & Financials

  • $1M$10M

    Beyond Batten Disease Foundation's revenue is estimated to be in the range of $1M$10M

Section iconFunding & Financials

  • $1M$10M

    Beyond Batten Disease Foundation's revenue is estimated to be in the range of $1M$10M

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