Insights

Partnership ExpansionRecently, Beyond Batten Disease Foundation partnered with Care Beyond Diagnosis, LLC to establish internationally validated management guidelines for an ultra-rare neurodegenerative disorder. This partnership signifies a commitment to collaborative efforts in the healthcare sector and presents an opportunity for joint initiatives or co-branded projects.

Key Personnel AdditionThe hiring of Lauren Trice as the Director of The Will Herndon Research Fund showcases an ongoing focus on strengthening the organization's leadership team. Leveraging the expertise of new key personnel can provide insights for potential collaborations, sponsorships, or research alliances.

Financial CapacityWith a revenue range of $100 million to $1 billion, Beyond Batten Disease Foundation demonstrates financial stability and capacity for investments or partnerships. Leveraging this strong financial position could be advantageous for joint funding opportunities, sponsorship deals, or customized research projects.

Industry DominanceAs a world leader in juvenile Batten disease research funding, Beyond Batten Disease Foundation holds a significant position within the research services sector. Associating with a prominent player like BBDF could enhance credibility, visibility, and collaboration prospects within the rare disease research landscape.

Technological InfrastructureBy utilizing a robust tech stack including Cloudflare, Shopify, and Yoast SEO, Beyond Batten Disease Foundation showcases a tech-savvy approach to operations. Exploring synergies around technology adoption, digital marketing strategies, or virtual events management could be areas of collaboration or service provision.

Beyond Batten Disease Foundation Tech Stack

Beyond Batten Disease Foundation uses 8 technology products and services including Cloudflare, Shopify, Priority Hints, and more. Explore Beyond Batten Disease Foundation's tech stack below.

  • Cloudflare
    Content Management System
  • Shopify
    E-commerce
  • Priority Hints
    Performance
  • Yoast SEO
    Search Engines
  • UltimatelySocial
    Social Sharing
  • Vimeo
    Video Players
  • Nginx
    Web Servers
  • Google Plus
    Widgets

Beyond Batten Disease Foundation's Email Address Formats

Beyond Batten Disease Foundation uses at least 1 format(s):
Beyond Batten Disease Foundation Email FormatsExamplePercentage
FLast@beyondbatten.orgJDoe@beyondbatten.org
63%
First@beyondbatten.orgJohn@beyondbatten.org
12%
Last@beyondbatten.orgDoe@beyondbatten.org
13%
FMLast@beyondbatten.orgJMDoe@beyondbatten.org
12%

Frequently Asked Questions

Where is Beyond Batten Disease Foundation's headquarters located?

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Beyond Batten Disease Foundation's main headquarters is located at PO Box 50221 Austin, TX 78763 US. The company has employees across 2 continents, including North AmericaOceania.

What is Beyond Batten Disease Foundation's phone number?

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You can contact Beyond Batten Disease Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Beyond Batten Disease Foundation's official website and social media links?

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Beyond Batten Disease Foundation's official website is beyondbatten.org and has social profiles on LinkedIn.

What is Beyond Batten Disease Foundation's SIC code NAICS code?

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Beyond Batten Disease Foundation's SIC code is 8641 - Civic, Social, and Fraternal Associations NAICS code is 5417 - Scientific Research and Development Services.

How many employees does Beyond Batten Disease Foundation have currently?

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As of January 2025, Beyond Batten Disease Foundation has approximately 5 employees across 2 continents, including North AmericaOceania. Key team members include President And Ceo: M. B. K.President: C. E.Director: S. B.. Explore Beyond Batten Disease Foundation's employee directory with LeadIQ.

What industry does Beyond Batten Disease Foundation belong to?

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Beyond Batten Disease Foundation operates in the Research Services industry.

What technology does Beyond Batten Disease Foundation use?

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Beyond Batten Disease Foundation's tech stack includes CloudflareShopifyPriority HintsYoast SEOUltimatelySocialVimeoNginxGoogle Plus.

What is Beyond Batten Disease Foundation's email format?

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Beyond Batten Disease Foundation's email format typically follows the pattern of . Find more Beyond Batten Disease Foundation email formats with LeadIQ.

When was Beyond Batten Disease Foundation founded?

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Beyond Batten Disease Foundation was founded in 2008.
Beyond Batten Disease Foundation

Beyond Batten Disease Foundation

Research ServicesTexas, United States2-10 Employees

In 2008, Beyond Batten Disease Foundation was formed by Charlotte and Craig Benson in response to their daughter's diagnosis of Batten disease and supported by a community who shared the belief that something had to be done. BBDF was established to eradicate juvenile Batten disease by raising awareness and funds to accelerate research for a treatment or cure. Today BBDF is the world leader in juvenile Batten disease research funding.

Section iconCompany Overview

Headquarters
PO Box 50221 Austin, TX 78763 US
Phone number
SIC Code
8641 - Civic, Social, and Fraternal Associations
NAICS Code
5417 - Scientific Research and Development Services
Founded
2008
Employees
2-10

Section iconFunding & Financials

  • $100M$1B

    Beyond Batten Disease Foundation's revenue is in the range of $100M$1B

Section iconFunding & Financials

  • $100M$1B

    Beyond Batten Disease Foundation's revenue is in the range of $100M$1B

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